Evening Update, Phone Update and Prayer Requests

TJ's MRI showed that everything was normal, so that is good. The apraxia is still a concern, and Mary Ann thinks that it is likely, but we'll see.

It's possible that TJ is doing better today than we realized. I just left the hospital and he was watching the news again, and nodding to (some) questions asked. He looked like he had a better idea of what was going on around him, but it's hard to say for sure.

A note from TJ's younger brother Jon is especially encouraging, as it speaks to why TJ was so tired today:

Jon,

Just read the blog and the comments on TJ's sleepiness. I was with him through the night and my observation was that he couldn't sleep. Most of the night his eyes were open and he was responding with head nods. He was a little restless, consistent with how I would feel if I was confined to a bed with nothing to do. They put on his CPAP at 2AM, and he finally seemed to sleep at about 4AM. He was sleeping when I left at 7AM.

Mary Ann has a new working phone. She can get texts but doesn't know how to respond yet.

Before we get to the prayer requests I want to mention how great the nurses, doctors, and PCA's (personal care attendants, they have CNA degrees) have been to us. They really have been nice, sometimes prayerful, very accommodating in general, and especially to us constantly bugging them about this and that. It's one thing for Mary Ann, an RN, to ask questions, it's another for me to be asking them about every different thing in the room and what it does, means, and how to read it. (At this point I think I can read the vitals monitor as well as anyone else.)

So our prayer requests are that TJ is able to get some real rest, that the apraxia would be resolved, and that TJ's neurological status would improve in general.

Thank you again for all your prayers, they mean the world to us!

FYI: Mary Ann's Cell Phone is Down

Which is mostly irrelevant to this blog but most of the people that need to get a hold of her read this blog regularly. Will let you all know when it is back up.

Wrench Updates

The doctors are becoming concerned that TJ isn't becoming more alert more quickly. He is going down for another MRI this afternoon.

The speech pathologist thinks it TJ may have apraxia, which means that TJ might be trying to move or speak but is unable to due to neurons not fully transmitting.

The doctors have said that the fever isn't clinically significant at this point.

I'll put up MRI results when we get them (probably tomorrow). He already has had an MRI recently, so I'll be a little surprised if they find anything new, but then again, I'm not the doctor ordering a couple thousand dollar (give or a take a thousand) procedure.

Note: I took off word verification for the comments to make it easier to comment. They'll remain off as long as the blog doesn't started getting spammed from all sides (problems I have faced in the past).

Another Wrench In the Mix

TJ has developed a general rash for unknown reasons, I don't have all the details yet, but suspect this is probably not just from laying in bed for so long, as they would be a pretty good reason.

Second, and perhaps more importantly (we'll see what happens with the first wrench) is that TJ looks sleepier today than he did yesterday, e.g., he is regressing in his mental status. Again, not much on the details, but I'll post them as soon as I know.